Korea's First Guidelines for Safe Meals for Children with Rare Diseases

By LEE HYO JUNG Posted : July 30, 2026, 16:36 Updated : July 30, 2026, 16:36
The Ministry of Food and Drug Safety has established the country's first guidelines for meal safety management for children with rare diseases. This initiative aims to create a safe meal environment for these children and alleviate the burden on meal service providers.

On July 30, the KFDA held a meeting at the Pyeongtaek Meal Management Support Center in Gyeonggi Province, where it unveiled the 'Meal Safety Management Guidelines for Children with Rare Diseases,' which includes 29 types of rare diseases. Attendees included representatives from rare disease organizations and meal service-related institutions.

The guidelines were initiated following a proposal from the Korean Association of Patients with Rare Diseases during the KFDA's 'Open Forum on Food and Drug Policy' in August of last year, advocating for meal management guidelines for children with rare diseases.

Children with rare diseases require strict dietary management due to the nature of their conditions, but their young age makes it difficult for them to manage their meals independently, necessitating careful oversight in meal service settings. Previously, meal service providers largely relied on information from guardians regarding meal safety, leading to a lack of systematic information and considerable confusion on-site.

The newly established guidelines reflect 29 types of rare diseases, based on a comprehensive survey of over 33,000 children's meal facilities supported by national meal management centers, ensuring that all children with rare diseases utilizing these facilities are included.

The guidelines cover key characteristics and symptoms of rare diseases, restricted and alternative foods for each condition, ingredient selection considerations, meal habit management, meal environment creation, and the roles and precautions for meal service personnel.

The KFDA plans to distribute these guidelines to 238 meal management support centers nationwide, enabling nutritionists affiliated with these centers to utilize them for hygiene and nutritional safety management in children's meal facilities.

The guidelines will also be shared with relevant departments, including the Ministry of Education, for broader application in various settings, and will be posted on the KFDA and Food Safety Management Agency websites for public access.

KFDA Commissioner Oh Yu-kyung stated, "I hope the meal safety management guidelines for children with rare diseases will be a first step in creating an environment where these children are not left out and can receive safe meals. We will continue to actively communicate with the field and provide necessary support."




* This article has been translated by AI.

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